"Great HNRNPH2 Walk" and Autumn's Story shared on BBC RadioOn Saturday the 9th & Sunday the 10th of September, the Yellow Brick Road Project charity is holding the first national sponsored walk along th...
- Lori Arnold
The Decision We Wish We Could Make With Our Daughter Rather Than For HerThe Decision We Wish We Could Make With Our Daughter Rather Than For Her This wonderful article was written by one of YBRP's Board Members and HN...
- Stacy Paddon
Rett-like Phenotypes in HNRNPH2-Related Neurodevelopmental Disorder
YBRP in Pharmacy Times: The Journey of Commitment to Ultra-Rare Disease Patients
YBRP gets a shout out in this great article by Chris Adams of Cydan, one of the amazing speakers at the 2019 Family Meeting. The article discusses the important role of parent led organizations and how the biotech and pharmaceutical industries can impact rare disease communities just like ours. (originally published August 2019)