Click the link here to listen to the interview from Ben Shaw:
https://youtu.be/D9eSA1prwnc?feature=shared
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This wonderful article was written by one of YBRP's Board Members and HNRNPH2 parent, Stacy Paddon, as she shares thoughts about the prospect of clinical trials.
Click here to read the article
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YBRP gets a shout out in this great article by Chris Adams of Cydan, one of the amazing speakers at the 2019 Family Meeting. The article discusses the important role of parent led organizations and how the biotech and pharmaceutical industries can impact rare disease communities just like ours. (originally published August 2019)
]]>YBRP gets a shout out in this great article by Chris Adams of Cydan, one of the amazing speakers at the 2019 Family Meeting. The article discusses the important role of parent led organizations and how the biotech and pharmaceutical industries can impact rare disease communities just like ours. (originally published August 2019)
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Co-founder Trish Flanagan discusses in an article the juggling act of ensuring we meet the needs of our special needs children and their neuro-typical siblings, and Morgan's Story wins Grand Prize for Neuroscience in the 2018 Neuro Film Festival (originally published June-October 2018).
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