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Quarterly Newsletter (3/31)

Quarterly Newsletter (3/31)

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YBRP attends the NORD Rare Summit 2019 in Washington, DC

YBRP attends the NORD Rare Summit 2019 in Washington, DC

YBRP's Trish Flanagan attended the 2019 NORD Rare Summit held in Washington, DC. This was a tremendous event that inspired and re-enforced YBRP's m...
  • Paula Tyson
YBRP attends the World Orphan Drug Congress in Barcelona

YBRP attends the World Orphan Drug Congress in Barcelona

Very excited to have had our International Outreach Coordinator, Stacy Paddon, representing and HNRNPH2 patients at the World Orphan Drug Congress ...
  • Paula Tyson
YBRP Around the Globe: Manchester Rare Disease Showcase

YBRP Around the Globe: Manchester Rare Disease Showcase

International Delegate and Outreach Cooridnator Stacy Paddon showcased YBRP at the Manchester Rare Disease Showcase.  YBRP continues to further our...
  • Paula Tyson