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YBRP attends the NORD Rare Summit 2019 in Washington, DC

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YBRP attends the NORD Rare Summit 2019 in Washington, DC

YBRP's Trish Flanagan attended the 2019 NORD Rare Summit held in Washington, DC. This was a tremendous event that inspired and re-enforced YBRP's mission and the quest to find a cure for HNRNPH2 genetic variations. Insightful discussions given by the FDA and the NIH and meaningful conversations were held with other rare disease groups. (originally published November 2019)

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