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communities\u003c\/strong\u003e\u003c\/li\u003e\n\u003cli\u003e\u003cstrong\u003eFunding research into HNRNPH2 mutations\u003c\/strong\u003e\u003c\/li\u003e\n\u003c\/ul\u003e\n\u003cp style=\"text-align: center;\"\u003e\u003cstrong\u003eJOIN THE JOURNEY AND BE A PART OF HISTORY! \u003c\/strong\u003e\u003c\/p\u003e\n\u003ccenter\u003e\n\u003ch4 style=\"text-align: left;\"\u003e\u003cstrong\u003eIn July 2024 the FDA officially approved the FIRST Human Clinical Trial for THREE patients!  n-Lorem has worked over the last few years to develop the ASO drug and will provide the drug itself at no cost.  The Clinical Trial is being administered at Columbia University Irving Medical Center.  But that is not the end!  It is up to US to raise the overhead costs for administering the clinical trial.  YBRP has raised $150,000 toward the Clinical Trial Implementation Fund to ensure the success of this program and bring us closer to broader clinical trials and treatment for ALL those with 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by HNRNPH2 mutations. \u003c\/strong\u003e\u003c\/h4\u003e\n\u003ch4\u003e\u003cstrong\u003e We do this by:\u003c\/strong\u003e\u003c\/h4\u003e\n\u003cul\u003e\n\u003cli\u003e\u003cstrong\u003eFunding\u003cspan\u003e \u003c\/span\u003einitiatives to identify more individuals with HNRNPH2 mutations, \u003c\/strong\u003e\u003c\/li\u003e\n\u003cli\u003e\u003cstrong\u003eConnecting families impacted by HNRNPH2 in order to contribute to the understanding of the disorder, \u003c\/strong\u003e\u003c\/li\u003e\n\u003cli\u003e\u003cstrong\u003eRaising awareness of HNRNPH2 mutations in the general public and scientific communities\u003c\/strong\u003e\u003c\/li\u003e\n\u003cli\u003e\u003cstrong\u003eFunding research into HNRNPH2 mutations\u003c\/strong\u003e\u003c\/li\u003e\n\u003c\/ul\u003e\n\u003cp style=\"text-align: center;\"\u003e\u003cstrong\u003eJOIN THE JOURNEY AND BE A PART OF HISTORY! \u003c\/strong\u003e\u003c\/p\u003e\n\u003ccenter\u003e\n\u003ch4 style=\"text-align: left;\"\u003e\u003cstrong\u003eIn July 2024 the FDA officially approved the FIRST Human Clinical Trial for THREE patients!  n-Lorem has worked over the last few years to develop the ASO drug and will provide the drug itself at no cost.  The Clinical Trial is being administered at Columbia University Irving Medical Center.  But that is not the end!  It is up to US to raise the overhead costs for administering the clinical trial.  YBRP has raised $150,000 toward the Clinical Trial Implementation Fund to ensure the success of this program and bring us closer to broader clinical trials and treatment for ALL those with HNRNPH2-RNDD!  We also continue to fund research into other treatment pathways, as well as the ever important Natural History Study.\u003c\/strong\u003e\u003c\/h4\u003e\n\u003ch4 style=\"text-align: left;\"\u003e\u003cstrong\u003eFunds raised also bring our families together for two annual conference, one in the USA and one in Europe, which are life lines for families and the only opportunity most have to connect with others who share their experience.  Our conferences bring all of the leading researchers in HNRNPH2 around the world to deliver information on what is happening in treatment research.  This is also where the assessments for the critical Natural History Study take place.  Donate and join us in \"building the road to a cure\"!\u003c\/strong\u003e\u003c\/h4\u003e\n\u003cp style=\"text-align: left;\"\u003e\u003cstrong\u003eIf you would like to do a custom amount please enter in the amount in $1 increments.\u003c\/strong\u003e\u003c\/p\u003e\n\u003c\/center\u003e\n\u003cp\u003e \u003c\/p\u003e\n\u003cp\u003e\u003cstrong\u003eThank you! \u003c\/strong\u003e\u003cbr\u003e\u003c\/p\u003e\n\u003cp\u003e \u003c\/p\u003e\n\u003cdiv style=\"text-align: left;\"\u003e\u003cstrong\u003eDonations can also be mailed to:\u003c\/strong\u003e\u003c\/div\u003e\n\u003cdiv style=\"text-align: left;\"\u003eYBRP, Inc.\u003c\/div\u003e\n\u003cdiv style=\"text-align: left;\"\u003e280 Ronbru Drive\u003c\/div\u003e\n\u003cdiv style=\"text-align: left;\"\u003eNew Rochelle, NY 10804 \u003c\/div\u003e"}