Thank you for participating in the 3rd Annual YBRP HNRNPH2 Virtual Awareness Walk!
On August 12th WALK YOUR WAY! Gather locally and walk your local track or walking trail. Organize your own neighborhood walk. Can't gather? No problem, take a solo walk at your local park or on your treadmill. The only requirement is that we have some fun while continuing to "build the road" to a cure! Not able to walk but would like to sponsor in this year's event? You can also choose to sponsor a patient or a family.
Our Goal is to raise $50k during this year's HNRNPH2 Awareness Week
YBRP assists in funding the Natural History Study which is critical in determining proper patient outcomes for treatment research already underway. In addition to funding the NHS, we provide the facilities for these important NHS evaluations and connect the researchers to families at our annual conferences. These scientific conferences and family meetings are also the only time that most patients and families are able to share space with another family like theirs, which is absolutely priceless! But we need your help to continue funding this important work in 2024!
Register or Sponsor and Join the Journey!
Choose registration or sponsorship below to show your support as our global community joins together in "building the road to a cure". If registering in the walk, you will receive a printable "bib" by email to wear the day of the walk.