"Building the Road to a Cure"

HNRNPH2 Support Groups

Currently, there are 3 Facebook support groups for HNRNPH2 patients and family members, both are private groups.  HNRNPH2 Mutations is a support group for patients, family members, friends, clinicians, and researchers.  HNRNPH2 Parents Unite is a support group exclusive to parents of HNRNPH2 patients.  This is a community of amazing families where you can ask questions, share your fears, challenges, experiences, and accomplishments! The Grandparents Group is for grandparents of children who have been diagnosed with rare HNRNPH2 mutations.To join any of these support groups, please email us at projectybr@gmail.com and you will be sent an invitation to join.

HNRNPH2 Parents Unite Support Group