"Building the Road to a Cure"
  1. Home
  2. Donate to HNRNPH2 Research

Donate to HNRNPH2 Research



Donations can also be mailed to:
YBRP, Inc.
280 Ronbru Drive
New Rochelle, NY 10804 

 

Funds raised by YBRP will be used to further the three main goals which comprise our mission:

  1. to fund research to identify, understand, treat, and ultimately cure those impacted by HNRNPH2 mutations;
  2. to fund initiatives to raise awareness and identify more individuals with HNRNPH2 mutations; and
  3. to connect families impacted by HNRNPH2 in order to contribute to the understanding of the disorder.

Our Research and Fundraising Goals

YBRP awards research grants annually to fund the Natural History Study, treatment research, clinical trial administration, and annual patient and scientific conferences.  The first human clinical trial for an ASO drug treatment for HNRNPH2-RNDD began in 2024 with three Pioneer Patients!  But that is not where our journey ends! While the drug is provided free of charge from n-Lorem Foundation, the administration costs must be funded.  Our hope with the success of this trial is a broader clinical trial with more HNRNPH2 patients.  We also continue to fund research into outcome measures and biomarkers, which are critical for broader clinical trials. The annual cost to fund all of these initiatives is approximately $425,00.  You can be part of something amazing by donating and joining the journey as we build the road to a cure.

*illustration courtesy of COMBINEDBrain.

 

YBRP maintains minimal overhead and operating expenses and all board members and officers are volunteers, no board member or officer receives any compensation for their services.  Approximately 70% of funds raised are dedicated to funding research, 20% to patient engagement/outreach & raising awareness, and 5% to operating expenses.


 

 

 

 

YBRP is an approved 501(c)(3) non-profit organization. EIN 83-4191901