"Building the Road to a Cure"

YBRP in Pharmacy Times: The Journey of Commitment to Ultra-Rare Disease Patients


YBRP gets a shout out in this great article by Chris Adams of Cydan, one of the amazing speakers at the 2019 Family Meeting.  The article discusses the important role of parent led organizations and how the biotech and pharmaceutical industries can impact rare disease communities just like ours. (originally published August 2019)

Click here to read the full article

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  • Paula Tyson