"Building the Road to a Cure"
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Donate to help fund the mission of YBRP

Product Description

The Yellow Brick Road Project is a charitable foundation whose mission is to fund research to identify, understand, treat, and ultimately cure those impacted by HNRNPH2 mutations. 

We do this by:

  • Funding initiatives to identify more individuals with HNRNPH2 mutations,
  • Connecting families impacted by HNRNPH2 in order to contribute to the understanding of the disorder,
  • Raising awareness of HNRNPH2 mutations in the general public and scientific communities
  • Funding research into HNRNPH2 mutations

JOIN THE JOURNEY AND BE A PART OF HISTORY! 

In July 2024 the FDA officially approved the FIRST Human Clinical Trial for THREE patients!  n-Lorem has worked over the last few years to develop the ASO drug and will provide the drug itself at not cost.  The Clinical Trial is being administered at Columbia University Irving Medical Center.  But that is not the end!  It is up to US to raise the overhead costs for administering the clinical trial.  YBRP has raised $150,000 toward the Clinical Trial Implementation Fund to ensure the success of this program and bring us closer to broader clinical trials and treatment for ALL those with HNRNPH2-RNDD!  

Our focus now turns to brining our families together in 2025 as we continue on the Rare Disease Roller Coaster!  Our US and European conferences are life lines for families and the only opportunity most have to connect with others who share their experience.  Our conferences bring all of the leading researchers in HNRNPH2 around the world to deliver information on what is happening in treatment research.  This is also where the assessments for the critical Natural History Study take place.  Donate and join us in "building the road to a cure"!

If you would like to do a custom amount please enter in the amount in $1 increments.

 

Thank you! 

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