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HNRNPH2 News - 2022 Third Quarter Newsletter

HNRNPH2 News - 2022 Third Quarter Newsletter

   2022 Third Quarter | Yellow Brick Road Project HNRNPH2 New     Inside this Issue Featured Family:  Meet Emma Spotlight On: Genetic Diagnosis M...
  • Lori Arnold

September 2021 Newsletter

September 2021 | Yellow Brick Road Project HNRNPH2 News ...
  • Paula Tyson

YBRP in Pharmacy Times: The Journey of Commitment to Ultra-Rare Disease Patients

YBRP gets a shout out in this great article by Chris Adams of Cydan, one of the amazing speakers at the 2019 Family Meeting.  The article discusses the important role of parent led organizations and how the biotech and pharmaceutical industries can impact rare disease communities just like ours. (originally published August 2019)

SPARK: The Tyson Family Story

SPARK: The Tyson Family Story

In this video, SPARK for Autism showcases Lillie Tyson and the Tyson family and how finding the underlying genetic diagnosis can be life-changing for both patients and their families (originally published February 2019).
  • Paula Tyson