"Building the Road to a Cure"

International Delegate Committee

Meet our amazing team of international delegates, devoted to improving lives of HNRNPH2 patients around the world.  If you have any questions, please feel free to contact the delegate in your area.

 

EASTERN UNITED STATES:

TRISH FLANAGAN – International Delegate, Eastern USA (New York) projectybr@gmail.com

Trish Flanagan is a co-founding board member and President of YBRP.  Trish is a seasoned Early Childhood Educator and earned her Bachelors Degree of Science from Penn State University majoring in Human Development and Family Studies with an Early Childhood focus.  Trish is dedicated to the Yellow Brick Road Project's mission and improving the life of her daughter, Morgan, and others touched by an HNRNPH2 mutation.

  

PAULA TYSON – International Delegate, Eastern USA (Georgia) ptyson@ybrp.org

Paula Tyson, YBRP Secretary, Treasurer & Director

Paula Cole Tyson is a dedicated co-founding member of the Project and devoted mother to Lillie, a beautiful little girl impacted by an HNRNPH2 genetic variation. She is currently a Compensation Consultant and Analyst at ChaseCompGroup.  Before joining the firm in 2011, she worked independently for consulting and other service firms, assisting in client relations, account management, and accounting functions.  Prior to her independent work, she worked for a private company for six years in personnel management and client relations and began her career as an analyst and consultant for Watson Wyatt (now Towers Watson) in the areas of human resources and organization effectiveness.  She obtained her Bachelor’s degree in Romance Languages from the University of Georgia, graduating Magna Cum Laude.

 

WESTERN UNITED STATES:

NICOLE GLENN – International Delegate, Western USA (California) nglenn@ybrp.org

 

Nicole Glenn is the West Coast delegate of the Yellow Brick Road Project and mother to Rose (Rosie), a tenacious three-year-old touched by the HNRNPH2 mutation. Nicole is dedicated to improving the lives of all children through her pediatric practice, and thanks to Rosie, wants to further help all children affected by HNRNPH2. She earned her bachelor’s degree in Physiology at the University of Colorado, Boulder and her medical degree at Rush University in Chicago. She completed her Pediatric Residency at Stanford Children’s Health Lucile Packard and practices General Pediatrics with the Palo Alto Medical Foundation in Northern California. As the West Coast Delegate, she’s determined to raise awareness for children living with HNRNPH2, advocate for their special needs as well as provide support for the families of these amazing kids.

 

STACY PADDON – International Delegate, UK & Europe.  spaddon@ybrp.org

Stacy Paddon is determined to help her daughter Cady and all those affected by HNRNPH2 mutations to live the best lives they can. She currently works for the Business Intelligence team at Christie's auction house in London, having previously spent time in the company's Human Resources office where she managed European recruitment. She has previously held management positions at the National Trust, the Vancouver 2010 Olympic and Paralympic Winter Games Organizing Committee and ING Insurance. She holds a Bachelor of Journalism degree from Carleton University with Combined Honours in Political Science and is a Chartered Insurance Professional.

 

ANDREIA ZANELATO - International Delegate, Central & South America  azanelato@ybrp.org

Andrea Zanelato is the International delegate for Central and South America and is based in Brazil. She is a Physiotherapist with a concentration on the spine and scoliosis and studied at FMU Centro Universitario in Brazil.  Andreia is devoted mother to Louise who is also impacted by a HNRNPH2 mutation.  She brings a wealth of knowledge in areas that directly impact HNRNPH2 patients, such as muscular and orthopedic issues.

 

ANDREIA RAMOS - International Delegate, Europe.  aramos@ybrp.org

O meu nome é Andreia, tenho 36 anos e sou de Portugal. Sou casada com o amor da minha vida e mãe de 2 meninas incríveis que mudaram totalmente a minha vida e as minhas prioridades. Sou médica de família e adoro a minha profissão, mas o que verdadeiramente me faz feliz é estar com a minha família e amigos. Representar a YBRP no meu país não me poderia deixar mais orgulhosa – devo a este projeto a minha esperança num futuro melhor para a Maria Miguel e, portanto, farei de tudo para continuarmos a chegar mais longe.

Andreia Ramos is the International delegate for Europe and is based in Portugal.  Andreia studied for 6 years in Barcelona/Spain, completed her residency in Portugal and is now working at a hospital near Porto, the northern capital of the country. She is a family doctor and is bringing her expertise in this area to further YBRP's mission. Also, due to her daughters’ condition, she is now trying to learn more about genetics, and she is definitely more attentive to early stage development changes in children. She is mother to two amazing girls who have totally changed her life and priorities. Andreia is proud to represent YBRP in her country and throughout Europe and credits the Project with giving hope for a better future for Maria Miguel, her oldest daughter who is impacted by an HNRNPH2 genetic variation, and brings a lot to the table to help further the YBRP's mission.

 

ESTHER OLLECH - International Delegate, Israel & Asia

Esther Ollech, born in Brazil and currently living in Jerusalem, is the YBRP delegate for Israel & Asia and the grandmother of Yaeli, who is touched by the HNRNPH2 mutation.  Esther is dedicated to helping Yaeli and all the other kids around the globe touched by this mutation by offering support, bringing awareness, and being an advocate on their behalf to advance all their special needs.  Esther previously ran her own business in event planning, Israel Events, and is currently working at LeMarc Agromond as the Special Events Coordinator and studying psychology at the Open University.  Esther is mother of six and grandmother of eleven.

 

ALANA FAHEY- International Delegate, Australia.  afahey@ybrp.org

Alana lives in Adelaide, Australia and is one of our newest delegates after joining YBRP when she received her daughter Isla’s diagnosis in 2020. 

Alana works part-time as an Admissions Officer for Aged Care.  She connects with families and hospitals to support the elderly transitioning into residential care. 

Prior to this, Alana had strong Marketing background with several Real Estate companies spanning over 10 years. 

She also is an active Mum for Isla’s younger twin brothers, who are 2 years old.

 


 

TANYA DEKONINCK - International Delegate, Canada. tdekoninck@ybrp.org

Tanya is a busy mom of 3, working part time as an office administrator in a small town in Manitoba, where she grew up. Before that she was a dental assistant for 2 years. Her middle child Emily is one of the few children affected with HNRNPH2. After receiving Emily’s diagnosis, Tanya was eager to find out more about HNRNPH2 and meet others with this condition. 

 

VERA UDOVICHENKO - International Delegate, Russia. vudovichenko@ybrp.org

Vera Udovichenko (Makarova) from Russia, Moscow is a happy mom to two sweet boys - the younger one, Boris, is touched by the HNRNPH2 mutation and is one of the few boys with this condition. Vera works as a web-editor for business school, speaks three languages - Russian, English and French - and runs a blog about her son and his diagnosis in Telegram.

 

KAORI SUZUKI - International Delegate, Japan. ksuzuki@ybrp.org

Kaori Suzuki is the mother of Nozomi, a little girl with the HNRNPH2 mutation. She is determined to raise awareness of HNRNPH2 and find other patients in Japan. She graduated from Ritsumeikan University with a degree in Industrial Sociology and she has been working for a pharmaceutical company since 2006.