"Building the Road to a Cure"

Privacy Policy

This Privacy Policy applies to information YBRP collects from persons (either electronically, via postal mail, in-person or over the phone) in connection with their HNRNPH2 diagnosis and relationship with YBRP, whether it be for a donation or other means, as well as all registrants or participants in YBRP sponsored events and users of any related services, applications, or sites that link to this Privacy Policy (collectively referred to hereunder as the "Services").

The Policy describes collection of data and legitimate use of Personal Information (e.g., information that identifies a specific person, such as name, address, email address, or credit or debit card number) where that information is not otherwise publicly available.  It also generally describes YBRP practices for handling information such as interests, demographics, and site usage collected from you, through us, or from a third party.


Personal Information

"Personal Information" is the information that identifies you as an individual, such as name, address, phone number, email address, and credit or debit card number.

Personal Information You Submit

We collect Personal Information when you submit it to us, including but not limited to when you submit a donation, register for or subscribe to certain events, products, or services, create a profile, participate in an auction or contest, or take a survey, etc.

Personal Information We Receive from Third Parties

We may receive Personal Information about you from third parties, including, for example, information about your transactions, purchase history, or relationships with various product and service providers, and your use of certain applications. For example, if you access an Online Service through a third party connection or log-in, such as Facebook Connect, that third party may pass certain information about your use of its service to us. This information could include, but is not limited to, the user ID associated with your account, any information you have permitted the third party to share with us, and any information you have made public in connection with that service.

Other Information

"Other Information" is any information that does not reveal your specific identity, such as browser information, information collected through cookies and other technologies, demographic information, and aggregated information. We may combine Other Information with your Personal Information, and when we do, we treat the combined information as Personal Information.

Other Information You Submit and Information Received from Third Parties

We collect Other Information when you submit it to us. It may include your age, gender, education, occupation, financial information, interests, photos, connections, and comments.

We may receive Other Information about you from third parties, including but not limited to, demographic data, information about your interests, and information about your activities on other websites.

Other Information We Collect Automatically When You are Online

Personal Data

Personal data is collected when users provide personal information that is not publically available to YBRP, for example by registering through the Site and donating funds. The personal information that you provide must be true, accurate, and complete and all registration details (where applicable) must contain your real name, address, and other requested details.

Aggregated information, such as information on traffic patterns within the Site, is collected by YBRP through various methods:

IP Addresses: We collect IP addresses through the Site. Web servers automatically identify your computer by its IP address, and when you request a page from the Site, our servers log your IP address. The Site does not link IP addresses to anything personally identifiable, so although your session will be logged, you will remain anonymous to us.

Use of Cookies:  YBRP may use cookies and other tracking technologies (including browser cookies, pixels, and beacons).  These are comprised of small bits of data that often include an anonymous unique identifier.  Cookies allow for the measurement of activity on the Site and improve your user experience. Cookies are used by YBRP make improvements and updates based on which areas are popular and which are not. We will make available cookies, containing non-personally identifiable information such as IP address and pages viewed, regarding your activity on the Site to certain third party providers with whom we work, in order to show advertisements relating to this Site that may be of interest to you. Most browsers are initially set to accept cookies. If you'd prefer, you can set yours to refuse cookies or to alert you when cookies are being sent. However, it is possible that some parts of the Site will not function properly if you do so.


We use the Personal Information we collect from and about you for the purposes set forth below. Please note that we may use and disclose Other Information for any purpose, except where we are required to do otherwise under applicable law. If we are required to treat Other Information as Personal Information under applicable law, then we may use and disclose it for all the purposes for which we use and disclose Personal Information.

To provide and manage our relationship and/or services. We use the Personal Information we collect from and about you to provide our products and services and features to you and to improve upon our services, including, but not limited to: fulfill your donation, send information about your relationship or transactions with YBRP, measure and improve services and features, allow you to comment on content, participate in online events and promotions, and to respond to inquiries.

To contact you. YBRP may periodically send promotional materials or notifications related to our products, services, campaigns, or events and/or the products and services of third parties to the email or address you provided. To help make these more relevant to you, we may use and combine any of the Personal and Other Information we collect to assist us in sending you promotional materials. If you want to stop receiving promotional materials from us, please let us know by contacting us as at projectybr@gmail.com or follow the unsubscribe instructions at the bottom of each email. We may also use your email address to respond to inquiries or requests you make to us.


Information Made Public Through Use of Our Services and User Privacy Settings

Certain features on our website or other online services give you an opportunity to interact with us and others. These may include forums, message boards, chats, and creating community profiles. When you use these features, you should be aware that any information you submit, including your name, location and email address, may be publicly available to anyone, including other users, search engines, advertisers, third party application developers, and anyone else with access to our Online Services. We are not responsible for any information you choose to submit and make public through these interactive features.

Our Disclosure of Information

We also share your Personal and Other Information:

To allow third-party service providers to assist us in providing and managing Our Services. We may make your Personal and Other Information available to certain third-party service providers, such as contractors, agents or sponsors, who help us manage or provide our products and services.

To permit third parties to send you promotional materials. We may share or trade your Personal and Other Information with other third party companies, groups, or non-profit organizations to directly market offers to you.

To protect the rights of YBRP and our users. There may be instances when YBRP may disclose your Personal and Other Information, including situations where we have a good faith belief that such disclosure is necessary in order to: (i) protect or defend the legal rights or property of YBRP or its affiliates, or their employees, agents and contractors (including enforcement of our agreements); (ii) protect the safety and security of users of our products and services or members of the public; (iii) protect against fraud or for risk management purposes; (iv) comply with the law or legal process, including laws outside your country of residence; or (v) to respond to requests from public and government authorities including public and government authorities outside your country of residence.

To complete a merger or sale of assets. If YBRP sells all or part of its business or makes a sale or transfer of its assets or is otherwise involved in a merger or transfer of all or a material part of its business, YBRP may transfer your Personal and Other Information to the party or parties involved in the transaction as part of that transaction.


Means of Notice and Choice. This Privacy Policy is the primary means by which we provide you with notice and choice about our collection and use of your Personal Information. If we ask for specific Personal Information that will be used in a manner different from what is described in this Privacy Policy, we will inform you at the time of collection.

Privacy Policy Changes. YBRP may modify this Privacy Policy as necessary.

Cross-Border Transfer. Your Personal Information may be stored and processed in any country where we have facilities or in which we engage service providers, and by using our products and services, you consent to the transfer of information to countries outside of your country of residence, including the United States, which may have different data protection rules than in your country.

Data Retention. We will retain your Personal Information for the period necessary to fulfill the purposes outlined in this Privacy Policy unless a longer retention period is required or allowed by law.

Linked Websites. Our Online Services may also be linked to sites operated by third parties, and may carry advertisements or offer content, functionality, games or applications developed and maintained by third parties. YBRP is not responsible for the privacy practices of any such third parties, and once you leave our Online Services via a link, enable a third-party service, or click an advertisement, you should check the applicable privacy policy of the third-party site.


YBRP takes reasonable efforts to secure and protect the privacy, accuracy, and reliability of your personal information and protect it from unauthorized access, misuse, alteration, and loss. YBRP implements appropriate security measures consistent with industry standards.  As no data security protocol is impenetrable, YBRP cannot guarantee the security of our systems or databases, nor can we guarantee personal information we collect about you will not be breached, intercepted, destroyed, accessed, or otherwise disclosed without authorization. Accordingly, any information you transfer to YBRP is provided at your own risk.


You can access or modify your information and modify your preferences by contacting us via email at projectybr@gmail.com or in writing at 280 Ronbru Drive, New Rochelle, NY 10804. 


If you have any further questions regarding this privacy policy or the use of your Personal and Other Information under this privacy policy, you can contact us at via email at projectybr@gmail.com or in writing at the address below:

YBRP, Inc.
280 Ronbru Drive
New Rochelle, NY 10804