YBRP attends the NORD Rare Summit 2019 in Washington, DC
YBRP's Trish Flanagan attended the 2019 NORD Rare Summit held in Washington, DC. This was a tremendous event that inspired and re-enforced YBRP's mission and the quest to find a cure for HNRNPH2 genetic variations. Insightful discussions given by the FDA and the NIH and meaningful conversations were held with other rare disease groups. (originally published November 2019)
- Paula Tyson