INTERNATIONAL RARE DISEASE DAY – 2/28/2018 – SPEAKING EVENTS
Trish Flanagan, Morgan’s mom and Secretary of The Yellow Brick Road Project, will be on the panel of speakers at the Albert Einstein College of Medicine event in NY, on International Rare Disease Day. The theme for the occasion is “Rare Disease Day: What Families Can Teach Us”.
Debbie Farkash, Mom to Yaeli and deeply involved parent of The Project, will be among the speakers in Israel at Sheba Medical Center at the hospital Tel-Hashomer International’s Rare Disease Day event. She will spread awareness for the rare HNRNPH2 diagnosis.